Monday, March 30, 2009
Monday, March 30, 2009 7:48 PM, CDT
Dear family and friends,
Deana has had a very busy day -- many tests and blood too. Generally speaking, Deana is doing quite well. However, cardiology did point out in a recent electro-cardiogram she has a "leaky valve". Medicine is being added to her regimen to account for this, and apparently it is quite common in Hyper-CVAD chemotherapy patients. Deana is taking this in stride.
Doctors have postponed the very important, yet painful bone marrow biopsy that was scheduled for today in hopes the procedure can be performed while Deana is consciously sedated. (The pain Deana endured the last time was so great, I complained to the doctors and insisted we manage her pain better this round.)
Deana is now eating soft food again!! Doctors won't remove the feeding tube for a couple more days until they're sure Deana doesn't have any complications.
Deana's spirits are very high and she remains optimistic despite being a pincushion for all these tests.
Have a great evening. Either Deana or I will post again tomorrow.
Virtual hugs to all,
Jack and Deana
Sunday, March 29, 2009 9:34 AM, CDT
Good day everyone, it is GREAT to be out of ICU. I am sitting up in a chair writing this enjoying my morning. Missing my boyz like crazy though.
My wonderful parents will be here today. They have not left my side either. Love you Mom & Dad, thank you for being here.
Just wanted to say hi & hug your loved ones today.
Deana & Jack
Then, she got very nervous.
We had Sam get his haircut too - at the same time to show her how a pro handles it.
She had this sad, very serious look on her face the entire time. And not one peep.
We tried to get her to smile with the promise of a lollipop but this was the best she could do.
The tough decision - what color lollipop to pick.
And then some bluebirds. They look a little bloated but I still think they turned out pretty darn cute!
The next morning I put them all in the wood thing on my dining room table as a center piece. I think they are so cute. These will for sure be the treat of choice for all future holidays and kids birthday parties. The kids loved making them and really loved eating them!!
**You have to look at the comment I received on this post. It is from Bakerella herself, the inventor of cakepops, the one who was invited on Martha Stewart to talk about her cakepops! She likes my bluebirds! :-)
Wednesday, March 25, 2009
Also, if you happen to read more of this blog...you'll notice I have been posting updates on you here. I hope you don't mind. This blog is mostly for my family since we don't live close. They know about you and what you are going through and wanted to get updates on your progress. They are praying and fighting for you too!!
Tuesday, March 24, 2009
Here is Sam on the train headin' South.
Here is Elise, sitting upright in her chair, facing forward. She looks like a serious rider. No messing around on the train for this little chica.
Ella started dancing.
After the tree picture, Elise and I were approached by some film students working on a little movie about an orange rolling through San Diego. They asked if they could film Elise chasing the orange. It took a couple of minutes and the promise of ice cream to get her to agree to chase the orange. The students said the film will be up on You Tube in about a month. They showed me some of the scenes. Looks cute. I must remember to check for the orange movie in April.